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Children's Continuing Care

Care provision for disabled children with complex needs can in certain circumstances be the responsibility of health rather than the local authority.  This information may be considered alongside the section on Social to show what rights and duties should be considered in planning a package of care, and with the section on Personal Budgets as an alternative to commissioned services.

All content on this website is to enable parents to have access to the information they need to make their own decisions and is not advice. None of the information is original, this is collated documents freely available on the web and links are provided to show the original source and author of each item where possible.
Information published by NHS England to show the structure of the NHS and how it works.  When considering making a complaint about health services it can be important to understand how the different parts interact with each other to ensure the most effective route to resolution.

An article by the Short Break Partnership providing legal guidance as to when short break services for complex children become the responsibility of the NHS rather than the local authority.

Barrister Steve Broach blogs his response to the consultation on proposed changes to Children's Continuing Care guidelines.
Guidelines published by the Department of Health intended to provide guidance for clinical commissioning groups (CCGs) when assessing the needs of children and young people whose complex needs cannot be met by universal or specialist health services.  This gives only gives information about the process to assess if a child is eligible for Children's Continuing Care, not what care will be provided.
A national needs assessment form from 2004 showing how to determine what level of support a child with continuing care needs might need.  This document is out of date, but in the absence of any more recent processes it may be helpful in discussions over level of care provided.
The Judgement quoted in the Children's Continuing Care Guidelines 2016 giving instruction as to when care needs are too complex to be provided by a local authority and so should instead be provided by health.

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